Caregiver – Online Resources
- Family Caregiver Alliance – Supports and sustains the important work of families nationwide caring for adult loved ones with chronic, disabling health conditions.
- National Center on Caregiving – Working to advance the development of high-quality, cost-effective policies and programs for caregivers in all 50 states.
- The Rosalynn Carter Institute for Caregiving – An advocacy, research, education and service unit of Georgia Southwest State University.
- Share the Care (STC) – A program of The National Center for Innovation. Focuses on educating caregivers, patients and all individuals involved in caregiving.
- National Alliance for Caregiving (NAC) – A coalition of national organizations focusing on advancing family caregiving through research, innovation and advocacy.
- The Foundation for Art & Healing/The Unlonely Project – Seeks to raise awareness about loneliness as a pressing health problem and promote creative expression as an innovative approach to alleviate it.
- StoryCorps – It’s mission is to preserve and share humanity’s stories in order to build connections between people.
- Imerman Angels – Provides personalized connections that enable one-on-one support among cancer fighters, survivors and caregivers
- Family Caregiver Support Program (FCSP) – Illinois Department on Aging
- Caregiver Action Network (CAN) – Family caregiver organization providing information and support to caregivers.
- Well Spouse – Providing peer support and education for spousal caregivers.
- Open Arms of Minnesota – A nonprofit that cooks and delivers free, nutritious meals to people living with life-threatening illnesses in the Twin Cities – Minneapolis and St. Paul, MN. (Recipe Archive)
- Cancer Legal Care – Engages the law to resolve the complex challenges facing people and communities in Minnesota affected by cancer.
- A Breath of Hope Lung Foundation – Fights lung cancer by funding innovative research, raising awareness and supporting patients and families.
- You and Lung Cancer – An educational program for patients and caregivers hosted by A Breath of Hope Lung Foundation. Provides expert advice and learning resources to assist discussions with your healthcare provider and make important decisions related to management and treatment.
- Jack’s Caregiver Coalition – It’s mission is to improve the way men think, feel and act in their role as a cancer caregiver.
- Angel Foundation– Emergency financial assistance, education and support for adults with cancer and their families in the Twin Cities – Minneapolis and St. Paul, MN.
- ARCHANGELS – Devoted to helping caregivers in all stages and situations of giving care by thanking them and connecting them with positive and life changing resources.
Guides and Tools
- National Cancer Institute – List of nationwide organizations that provide emotional, practical and financial support services for people with cancer and their families.
- National Transitions of Care Coalition – Tools and resources for caregivers including Taking Care of My Health and My Medicine List.
- Next Step in Care (a program of United Hospital Fund) – Providing a complete family caregiver guide, including – personal health form and medication management guide/chart.
- Home Alone Alliance – AARP – Videos in English and Spanish on caregiving; founded by the AARP Public Policy Institute, The Family Caregiver Alliance, The United Hospital Fund, and The Betty Irene Moore School of Nursing at the University of California, Davis.
- American Cancer Society – Caregiving guide
- Cancer and Careers – Educating people with cancer to thrive in their workplace; providing employees and employers with resources.
- Cancer.net – Oncologist-approved information from American Society of Clinical Oncology (ASCO) – list of blogs and articles regarding caregiving
- American Psychological Association (APA) – Resource for psychology and other health and social service professionals. Also provides “Caregiver Briefcase” including helpful general information, tools and resources for family caregivers.
- Caring From a Distance – Providing local resources for long distance caregivers across the country.
- Women’s Institute for a Secure Retirement (WISER) – Financial information for caregivers regarding finances and retirement.
- Lotsa Helping Hands – A free caregiving coordination web service that provides a private group calendar allowing family and friends to sign up for specific tasks.
- The Caregiver Space – A site for caregivers to ask questions, share experiences and get answers from a community of caregivers.
- The Mighty – A blog site dealing with a wide variety of health topics.
- National Coalition for Cancer Survivorship – Advocates for quality cancer care for all people touched by cancer. Resources include cancer survivor toolkit.
- Triage Cancer – National organization (IL office) providing education and resources on legal issues facing individuals diagnosed with cancer and their caregivers.
- CancerFinances.org – Toolkit for navigating finances after cancer. Includes The SamFund which provides support for young adult cancer survivors.
- Department of Health and Human Services’ Office for Civil Rights – Responsible for the enforcement of HIPAA (Health Insurance Portability and Accountability Act)
- Illinois Department on Aging – Services and information for caregivers and residents, including advance healthcare directives.